Ollie and Amelia's mum, Lucy writes,
"Last October Ollie won The most Inspirational Child Award at the Wellchild Awards. At the award ceremony Ollie met Prince Harry. What happened that day was truly magical, Ollie used all of his strength to stand on two feet to give Prince Harry a huge hug.We truly believe in that moment a bond was made between Ollie and Prince Harry.
A few weeks after the awards we received the amazing news that Ollie and Amelia had been granted access to compassionate use of a pioneering treatment for CNL2 Batten Disease. We finally had some hope!